| I have a child with cleft lip and palate. Anyone with the similar health problem? How did the childs surgeries go and how is their speech. Did they have or do they have missing teeth? Parenting - 3 Answers Random Answers, Critics, Comments, Opinions : 1 : My oldest girl(now 16) was born with a cleft palate & a recessed jaw. It was first misdiagnosed as Robin Syndrome(sp), which would've indicated possible brain damage. However, this was ruled out after some tests were run. It was determined she was sucking her thumb while in the womb & this caused both problems. I was active military at the time & the Air Force surgeons did a fantastic job of repairing the cleft. She had to go in for periodic checkups to ensure the palate was growing normally & that she had no jaw problems. The surgery cured her of the thumb sucking as well because her arms were wrapped with tongue depressors & ACE bandages for several weeks. ;-) We did have to send her to a speech therapist at about age 6. The only other problem was chronic earaches & a little hearing loss in one ear. However, she has had no serious health problems. She did have to have some teeth pulled in order to wear braces, but that was it. She is a normal acting smart aleck teenager. ;-) Here is a link to check out. http://www.cleft.org I hope all works out for you. Dan 2 : my daughter was born with a cleft lip and palate among other things. she has had many surgeries and more to come. all her surgeries have been good. she does has speech probs and is missing her 2 front teeth and all her other teeth are capped to keep them in good shape. all in all after the surgeries are done and over u can never tell he-she had it 3 : My son was born with a cleft palate. He is 2 years old now and doing great. He had tubes put in his ears at 4 months and that helped so much with the ear infections, which cleft kids are prone to. His palate closure happened when he was 11 months old and it was of course hard, but he came through great. As of right now our team is hopeful it will be his only surgery, but they can't say for sure until they see how his mouth changes as he grows. Feeding is of course a big issue and for 2 weeks after surgery he could only have liquids. We contacted Early Intervention and my son has had in-home speech for the past year. He is starting to catch up and say more. His teeth so far are fine, but they are coming in slow. My brother also had a cleft lip and palate and he is one of the most well adjusted people I know. He is 26 now and finally finished with surgeries. He had one a year from birth to age 20. He always says it was no big deal to him and if he can help us with anything he will, but that it does not effect his life in a negative way at all. When my son was born I found cleftadvocate.com to get a lot of my questions answered. It was a huge help in those early months. Good Luck! Read more discussions :
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Wednesday, July 16, 2008
I have a child with cleft lip and palate. Anyone with the similar health problem
